To schedule an appointment call the Department of Pediatric Scheduling at (801) 213-3599. Los Angeles Director: Katherine Nathanson, MD Hotels. Director:Danielle A. Nolan, MD Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Toronto, Ontario Clinic Frequency: Daily as needed Co-Director: Deborah Rukin Gold, MD The support they need is the support you can give. Chicago Out-of-State Medicaid Policy: Some states are accepted; please contact the clinic for current policy. Coordinator: Paula Shock, BSN, RN Clinic Frequency: Monthly, the last Tuesday of the month Coordinator:Amy Davis, BSN, RN Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Director: James H. Tonsgard, MD Age Range Seen: Children and young adults up to age 21 years old. WebFind the Best Neurologist near you in Loma Linda, CA . Director: Philippe Major, MD Detroit Coordinator: Michal Leithner Sanigou TSC Clinic Frequency: Every first Monday and Thursday afternoon with urgent evaluations scheduled when possible. Laura E. Istrate is a neurologist in Loma Linda, California and is affiliated with Loma Linda University Medical Center-Murrieta. Beaumont Childrens TSC Clinic Dr. Werner sees all ages, however adults with commercial insurance or Medicare who have mild cognitive (i.e. Clinic Frequency: Daily. Coordinator (pediatric): Wynne Bird, BSN, RN, CPN at Childrens Hospital For Clinic Information and to schedule an appointment call (206) 987-2078. Interim Director: Elizabeth Donner, MD Age Range Seen: Children will be seen by Dr. Porter at Lucile Packard Childrens Hospital. Adults will be seen by Dr. Scheherazade Le at Stanford Hospital & Clinic located at 300 Pasteur Drive, Third Floor, Room A301. Coordinator: April Hanifen To schedule an appointment call (312) 227-3540. Clinic Frequency: Monthly Age Range Seen: Children and Adults Age Range: Children and Adults The 5-minute survey is anonymous your answers will not be linked to any information that can identify you. Coordinator: Eugenia Law, RN Director: Michael Ciliberto, MD Director: Tal Giboa, MD TSC Clinic at University of Illinois at Chicago Co-Director: Derek Bauer, MD (Adults) Shopping. This is the phone number for the pediatric neurology specialty clinic, which includes TSC. Stephen Pautler and Patrick Luke (urology); Dr. Marco Mura (respirology); Dr. Wei Jing Loo (dermatology); Drs. Orlando Health Arnold Palmer Hospital for Children Hackensack To schedule an appointment, call (786) 624-3552. For more information about the clinic call (614) 722-4665 and to schedule an appointment call (614) 722-4625. Director: Mustafa Sahin, MD, PhD Clinic Frequency: The local practice is to see patients as and when they come. WebGeneral Child Neurology. Coordinator: Katie Wanninger, RN, BSN Administrative Coordinator: Dallas Matthews TSC Clinic at Prisma Health Columbia SC 4543. WebDr. For clinic Information and to schedule an appointment, call (416) 813-7654 extension 201123. Age Range: Children and Adult. For Clinic Information and to schedule an appointment call (314) 268-2737. Coordinator: Jan Paolini, RN, MSN, PNP Co-Directors: E. Martina Bebin, MD, MPA and Bruce Korf, MD, PhD For information about the TSC Clinic or to schedule an appointment call (646) 558-0808. Clinic Frequency: To be determined. Administrative Coordinator: Anais Ruiz [email protected] Miami He received his medical degree from Johns Orange Tel Hashomer Childrens Hospital of Pittsburgh TS Clinic 11175 Campus St, Loma Linda, CA, 92354. Food. To schedule an appointment call Ashley Hamilton at (248) 551-6355. Tuberous Sclerosis Clinic at Childrens National To schedule an appointment, call (860) 837-7500. Dell Childrens Hospital Seattle 339 Windermere Road, London, Ontario N6A 5A5 Jerusalem For more information or to schedule an appointment, contact appointment scheduling at (407) 303-8127. Natalya Karp and Dervla Connaughton (genetics); Dr. Raymond Lee (dentistry). For clinic information and to schedule an appointment, please call (973) 322-7042. Neurology Residency. Co-Director: Victor Gonzalez-Montoya, MD (adults) Clinic Frequency: Weekly, every Tuesday. Hadassah TSC Clinic For CHOP appointments, call (215) 590-1719. For clinic information contact Sue Wolff at (937) 641-3800 and to schedule an appointment contact Sarah MacDonald RN, BSN, CPN at (937) 641-3497. Bethesda Out-of-state Medicaid: Accepts pending pre-authorization from the Medicaid provider. San Bernadino, CA 94208. Age Range Seen: Children and young adults up to age 21 years old For more information about the TSC Clinic contact Claire Sartwell, RN, BSN at (713) 500-7149. Clinic Frequency: Monthly, the first Tuesday. To schedule an appointment, call (434) 924-2706 and ask to speak to Caitlin Jenkins. TSC Multidisciplinary Clinic at Rady Childrens Hospital San Diego Kansas City Hawthorne, Westchester, and Hudson Valley Milwaukee CHU Sainte-Justine, University of Montreal Clinic Frequency: First Monday P.M., second Tuesday A.M., third and fifth Tuesdays P.M. every month. Inform the scheduler that you are calling to make an appointment to see Dr. Ashwal. Director: Jamie K. Capal, MD Age Range Seen: Children and Young Adults up to age 25 years old For more information about the clinic contact Michelle Sanders at (803) 434-8333. Our network includes Dr. Andrew House (nephrology); Drs. Out-of-State Medicaid Policy: Does not accept for outpatient visits. Age Range: Children and Adults up to age 60 years. Charlottesville If you are an adult with TSC or parent of a dependent adult with TSC, call (650) 498-7551 for New Patient Appointments to be seen by Dr. Scheherazade Le. Age Range Seen: Children and Adults Tuberous Sclerosis Center of Excellence at Le Bonheur Childrens Hospital Clinic Frequency: Monthly, every second or fourth Wednesday. Age Range: Children and Young Adults. Atlanta Coordinator: Heather Ausby, BHA, BSN, RN Clinic Frequency: One Friday afternoon per month and as needed weekly at main campus or off site locations. WebDr. Coordinator: Sonja Steinbrueck, RN Affiliated with Texas Childrens Hospital, Baylor College of Medicine Out-of-State Medicaid Policy: Accepts any that will reimburse. To schedule an appointment call (513) 636-0073 and speak to Steve Fordyce or [email protected]. To schedule an appointment with Dr. Liu call his coordinator, Crystal Ballard at (919) 660-3234. Coordinator: Jennifer McCrave, RN, BSN, CNRN Cincinnati To schedule an appointment contact Sabrina Dekel at [email protected] or 972-8-6245469. Age Range Seen: Children and young adults up to age 21 years old. 88032). Director: Sepideh Mokhtari, MD TSC Clinic at Neural Clinic Mexico Multidisciplinary Tuberous Sclerosis Clinic at Ann & Robert H. Lurie Childrens Hospital of Chicago Coordinator: Perla Bautista Muench, RN, BSN (Pediatric) Clinic Frequency: Weekly. Coordinator: None Clinic Ambassador: Lana Vidal,[email protected], (201) 565-7662 Coordinator: Kari Privette, RN For clinic information and to schedule an appointment, call (312) 996-7865. Administrative Coordinator: Chitra J. Narayanan Neurology Locations Loma Linda University Faculty Medical Clinics Neurology 11370 Anderson St., Suite B100, St. Louis Often undetected. Co-Director: S. Parrish Winesett, MD Swedish Neuroscience Institute To schedule an appointment, call the Neurology appointment line at (202) 476-3611. The Herscot Center for Tuberous Sclerosis Complex at Massachusetts General Hospital Clinic Frequency: Every other week. Clinic Frequency: Monthly, every third Tuesday (subject to change). The TSC clinical consensus guidelines consist of a series of objective metrics that help measure a clinics commitment to TSC care, the availability of particular medical specialties relevant to TSC, the availability of particular educational resources and whether or not a clinic participates in clinical trials. To schedule an appointment contact Kalisha Moore at (803) 434-3572. Contact Ashley Pounders at [email protected]. Obtenga ms informacin. Coordinator: Jamie MacDougall, RN, BSN, CPN Salt Lake City WebOur Services. Durham Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Co-Director: Sotiris G. Mitropanopoulos, MD Clinic Frequency: Monthly, every first Wednesday morning (subject to change). TSC Clinic at Institute of Neurology at St. Barnabas ^Due to overwhelming interest in our monthly multidisciplinary TSC program, we are now offering patients the opportunity to schedule with all the necessary subspecialists in individual clinics within a short time frame, possibly same-day. Coordinator: Lucie Ct RN McGovern Medical School, University of Texas Health Science Center at Houston A TSC Clinic Ambassador: To view full information about each TSC Clinic, please scroll down or click on the map below: All information listed in the map is also repeatedbelow. WebDr. Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Clinic Frequency: Weekly Coordinator: Nancy Elling, RN, BSN, CPN Mid-Atlantic Epilepsy and Sleep Center Coordinator:To be named MyChart. Coordinator: Myra Johnson, RN, BSN Coordinator: Elena Gonzalez, PNP, MSN Out-of-State Medicaid Policy: Accepts Alabama and Kentucky and evaluates others on a case-by-case basis. *Adults with TSC and seizures. WebMake an Appointment. She received her medical degree from Chicago Montreal, Quebec Age Range: Up to age 21 years The TSC Alliance has offered TSC Clinic designations to the institutions listed below in order to help serve as a resource for the TSC community to identify where comprehensive clinical care for people with TSC is available. Clinic Frequency: Monthly. The Tuberous Sclerosis Clinic For Clinic Information call (501) 364-4941. For more information or to schedule an appointment call (909) 835-1810. Age Range Seen: Children and Adults. Director: David S. Wolf, MD, PhD Age Range Seen: Children and adults Meet Our Providers. Age Range Seen: Children Selene Jamall is a Neurologist in Loma Linda, CA. TAND Unit Director: Tanjala T. Gipson, MD, Publications, Infographics and Sample Letters, Biosample Repository and Natural History Database, 2023 Regional TSC & LAM Conference Series, This website uses cookies to improve your user experience. Co-Director: Anne Marie Michon, MSN, RN, CPNP-PC For Clinic information and to schedule an appointment call +91 11-43033333. Director: Aimee Luat, MD Namath S. Hussain is a neurosurgeon in Loma Linda, California and is affiliated with Loma Linda University Medical Center. WebDr. Clinic Frequency: Monthly, pediatric multidisciplinary TSC program^meets first Friday and the adult multidisciplinary TSC program meets first Tuesday AM. Clinic Frequency: Weekly on Mondays and Tuesdays Age Range Seen: Children and Adults Director: To be announced. Flexible to meet patient needs. For Clinic Information and to schedule an appointment call (514) 345-6510. Le). For adult care information and to schedule an appointment call 314-362-7845 and Press 2 Age Range Seen: Children and young adults up to age 21 years. For information and to schedule an appointment, call (319) 356-8427. Coordinator: Raeann Moore, RN Loma Linda, CA has 120 Neurologist results with an average of 23 years of experience and a total of 503 reviews. Livingston For TSC Clinic information and to schedule an appointment call Loretta Dunn at (919) 668-4835. Farmington Multi-Disciplinary Tuberous Sclerosis Program Referrals to any specialist in the TSCN provides an entry point to multidisciplinary care, while undifferentiated cases can be referred to Dr. House. TSC Clinic at Akron Childrens Hospital For information and to schedule an appointment, call (717) 531-8790. Clinic Ambassador: Dana Holinka,[email protected] Out-of-State Medicaid Policy: No restrictions. Age Range Seen: Children only under age 18 years. Director: Ali Mostajelean, MD The TSC sub-specialists also see TSC patients most days of the week. For pediatric information and to schedule an appointment call (314) 454-6120 and ask for Ashley. Age Range: Children and Adults Age Range Seen: Children and Adults* To schedule an appointment, call the TSC Center at (212) 342-1036. Co-Director:Muhammad Zafar, MD Co-Director: Elena Gonzalez, PNP, MSN Director: Sita Paudel, MD To better serve our diverse community, we offer interpreter services free of charge for both patients and family. Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. This option minimizes wait times and gives patients all the same care and treatment as the Multidisciplinary Clinic. Birmingham Clinic Frequency: Monthly. Le who are specialists in neurology and epilepsy will refer patients to the appropriate specialists for evaluation and management of other issues related to TSC, as needed. Director: Shelley Williams, MD Clinic Without Walls serving NYC, Westchester, Hudson Valley & Connecticut TSC Center at the Columbia University Irving Medical Center/New York Presbyterian Advent Health Medical Group Epilepsy at Orlando Clinic Frequency: Every 4 to 8 weeks. Director: Doug Smith, MD Co-Director: Erika Axeen, MD (Pediatrics) Nashville Search MapQuest. Questions? Houston Age Range Seen: Children and adults The TSC Alliance does not accredit any TSC Clinic or TSC Center of Excellence, and the TSC Alliance does not directly provide or guide any clinical care or medical decision-making. To schedule an appointment, call (858) 966-5819. For more information or to schedule an appointment, call 972-2-6779375. WebWe provide comprehensive pediatric neurology services, including treatment for epilepsy, traumatic brain injury, cerebral palsy and more. Age Range Seen: Children up to age 21 years old. Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Butterflies Child Development Centre and Paediatric Specialty Clinics Co-Director: Sarah Weatherspoon, MD Age Range Seen: Children and Adults TSC Clinic at Northeast Regional Epilepsy Group To schedule an appointment call (410) 328-3574. Northern California TSC Clinic at Lucile Packard Childrens Hospital Director: Priyamvada Tatachar, MD Clinic Frequency: First Tuesday of each month. Your comments in this online survey will be shared with the TSC Clinic Director and staff. Coordinator: Jennifer Harrell, RN *Adults will be seen for an initial diagnosis and ongoing care provided you have a primary care physician. Co-Coordinators: Liberty Taeger and Lauren Siebrase-Wilkes, MSN, FNP-C Duke Medical Center For information and to schedule an appointment, call (301) 530-9744. Director: Anuja Jindal, MD, MPH Clinic Frequency: One half-day every second Monday of the month. WebFind the Best Pediatric Neurologist near you in Loma Linda, CA . London, Ontario Co-Director: Michael Doherty, MD Age Range Seen: Children and Adults*. Director: Steven DeRoos, MD Clinic Ambassador: Treasa Bolger-Dunlap, [email protected] Director: Andy Rodriguez, MD (Adult)Co-Director: Aliza Alter, MD (Pediatric) Age Range Seen: Children and young adults up to age 21 years. An article in the Winter 2021 issue of Perspective Magazine highlights the changes the TSC Alliance is implementing in phases beginning in 2021. For more information about the UAB TS Clinic and to schedule an appointment, contact Jessica Krefting, BSN, RN at (205) 975-2890 . To schedule an appointment or for information on how to get a new patient referred to the TSC clinic please call (310) 206-4037 or [email protected] The Neurofibromatosis and RASopathy Program at Childrens Hospital of Wisconsin WebGet directions, reviews and information for Loma Linda Neurology in Loma Linda, CA. For information about the clinic contact Jamie at (313) 832-9610 and to schedule an appointment call Camille Hoskey at (313) 832-9620. When you call the listed number for clinic information, please be sure to tell them you or your child has TSC, then specify you want to make an appointment with the doctor who is listed as the Director/Co-Director. Please email [email protected] or call (240) 463-7250 to report any problems you encounter with the contact information posted below. Merida, Yucatan Age Range Seen: Children and Adults Co-Director: James W. Wheless, MD Tampa For Clinic Information call Dr. Garcia at 52-999-9490869 and to schedule an appointment, contact Alma Martinez at 52-999-9260207 or [email protected]. Coordinator: Alison Cantarano, RN Scottish Rite for Children Learn more. Out-of-State Medicaid Policy: Requires one-time agreement with UCLA. For clinic information contact Lisa Vala at [email protected]. Director: Ajay Gupta, MD, FAAP Co-Director: Michael Wong, MD, PhD Age Range Seen: Children and Adults. Administrative Coordinator: Carmen Williams Clinic Frequency: Monthly For information or to schedule an appointment call (832) 822-5046. Orlando Austin Please call or email Twyla Peoples to schedule an appointment (919-843-1529,[email protected]). For more information or to schedule an appointment, call 972-3-5302687 or email [email protected]. Age Range Seen: Children and young adults up to age 21 years. Director: Stacie Stapleton, MD For Clinic Information and to schedule an appointment call(984) 974-7337 TSC Clinic at Seattle Childrens Hospital Age Range Seen: Children and Adults To schedule an appointment, call the scheduling secretary at (302) 651-5930. Coordinator: Stacey Hesse, RN TSC Clinic at The Cleveland Clinic Children under age 12 years old with neurological issues are referred toChildrens Hospital of Philadelphia(CHOP) for evaluation. TSC Clinic at Rainbow Babies and Childrens Hospital, University Hospitals of Cleveland Medical Center For information and to schedule an appointment, call (443) 923-2746 or email [email protected]. WebThe 527 Neurologists available in Loma Linda, CA average 4 stars across 3,033 reviews. Clinic Ambassador: Bridget Britt, [email protected] Clinic Ambassadors: Reiko [email protected] Age Range: Children In order to qualify as TSC Clinic or TSC Center of Excellence, a clinic must follow establishedTSC clinical consensus (treatment) guidelines developed by an international group of clinical experts, many of whom are members of the TSC Alliance Professional Advisory Board. For information and to schedule an appointment, call (352) 294-5000. To schedule an appointment call Susan Dewitt at (502) 588-3650, extension 50032. Clinic Frequency: A multidisciplinary clinic is held every second Thursday of each month. WebOverview. Coordinator: Michelle Sanders, LPN Age Range Seen: New patients up to age 21 years. Director: Stephanie Randle, MD, MS Dallas Clinic Frequency: Weekly, half-day on Tuesday and half-day first Wednesday of each month. Age Range Seen: Children and Adults What you need to know about TSC. If you have any questions, contact Ashley Pounders at [email protected]. TSC Clinic at Sheba Medical Center Our pediatric neurology team is here Co-Director: Oded Volovelsky, MD, PhD Age Range Seen: Children and Adults Physician Assistant: Sheri Escalante, PA-C Co-Director: Sunil Naik, MD AdultsMonthly, every third Thursday. Age Range Seen: New patients up to age 25 years. Co-Director: Chad Jacobsen, MD Co-Director: Joo Hee Seo, MD, MSc Age Range Seen: New patients up to age 20 years. Co-Director: Siddarth Shah, MD Adults who need other specialty care outside of epilepsy/neurology will be referred to other subspecialties with TSC expertise such as dermatology, genetics, urology, or pulmonology. Age Range: Children up to age 18 years. Clinic Ambassador: Tricia Bodner Clinic Frequency: Monthly, first Friday. Coordinators: Melissa Branham, RN (pediatrics) and Laura Sutherland, RN (adults) Easily misdiagnosed. Director: Hans Shuhaiber, MD Program Overview. Childrens Hospital of Orange County TSC Clinic Clinic Frequency: Third and fourth Wednesday every month afternoon clinic. Acting Director: Michael Kohrman, MD Coordinator: Samantha Witham, BSN, RN, CPN Clinic Frequency: Monthly Coordinator: Paula Klima, RN Coordinator: Adina Chirla, BSN, RN Laura E. Istrate is a neurologist in Loma Linda, California and is affiliated with Loma Linda University Medical Center-Murrieta. Coordinator: Erin Kelly, BSN, RN, CEN Clinic Frequency: Weekly Founding Director: David N. Franz, MD For information or to schedule an appointment call (512) 628-1855. Scheduling is flexible to meet patients needs whenever possible. Baltimore Director: Peter B. Crino, MD, PhD Coordinator: Maria Bonanni, MSN, CRNP and Megan Lawrence (administrative) Clinic Frequency: Monthly. Childrens Healthcare of Atlanta Childrens Hospital Los Angeles Tuberous Sclerosis Clinic For Clinic Information and to schedule an appointment call (727) 767-3675. Co-Director: Surya Prasadarao Rednam, MD, MS